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The Friends of Children with Neurofibromatosis is a Dallas auxiliary group of The Texas
Neurofibromatosis Foundation committed to serving the needs of the Foundation, our patients
and their families, as well as promoting public awareness.

NF stands for Neurofibromatosis (neuro-fibro-ma-toe-sis) which is complex genetic disorder
of the nervous system which can result in terrible disfigurement, deformity, deafness,
blindness, brain tumors, cancer and even death. NF knows no boundaries, as it is equally
common in males and females and every racial and ethnic group, and 50% of all the people
with NF have no family history of the disorder. While not all NF patients suffer from the most
severe symptoms, all live with the uncertainty of not knowing if, or when, they might be severely
affected because NF is a highly variable, and progressive disease.

NF affects more people than most forms of muscular dystrophy. And there has never been a
telethon. It is more common than cystic fibrosis. And you have probably never heard of it.
How can a disease be this prevalent and so unknown? Friends of Children with NF are
determined to change that! We are a newly formed auxiliary that supports the Texas
Neurofibromatosis Foundation.

We are hopeful the day will come when NF is eradicated or, at a minimum, becomes a chronic
condition that can be easily treated so those who endure the more serious complication may
find relief. We believe that day is coming. And progress is being made!

The Friends of Children with NF was created to help provide hope for a Brighter Future to
those facing the uncertainty that a diagnosis of NF brings. There are numerous ways to help
us. We are always looking for volunteers to help at events. You can support us financially.
Every dollar counts! Fund the Research. Find the Cure. Provide hope for a Brighter Future!